Friday, February 4, 2011

I've Moved!

Don't anyone have a heart attack now, but....in less than 2 weeks I have changed the look of my blog and decided to move my blog!!!! I know it is crazy....no changes for 2 years and then I start changing things and up and move! I am very excited about some of the new features I will have available to me with this new format! Please come check it out at http://urbanpioneerwoman.com/

Eventually I plan to delete this site, but don't worry, everything has been moved to our new home already!

Sometimes a Disability is Just a Difference

I was folding laundry and watching Star Trek: Deep Space 9 the other day, when I had an epiphany. The episode was about a woman from a planet with very little gravity, who wanted to join Star Fleet and now works in an environment with what we would call "normal" gravity. In order to move in this environment, she had to wear these things on her arms and legs that looked like braces, use a cane, and at times a special chair. People could tell that she was different and were always offering to help her, but she was very defensive and did not want to be treated as if she were disabled. Once her very basic needs were met, she felt that she needed to make up the difference herself and adapt. Later on in the episode, she is able to start treatments that will allow her to walk as a "normal" person, but it comes with the catch that she would never be able to live long-term on her home planet. She is discussing this with a friend, who brings up the Hans Christian Anderson fable, A Little Mermaid, who made a similar choice and in the end mourned what she had lost.

This past week I had some tough days as I grappled with Jessica's developmental delays, partly because she's my daughter, partly because I identify with her, and partly because it is my field of study. This makes for a very tangled web that is really hard to tease apart. BUT, after watching this episode I think I finally understand. When someone says that they think Jessica might have Aspergers, I immediately think "they think there is something wrong with her" which immediately brings back a flood of memories from my childhood because I sometimes (despite my parents' best efforts) felt like there was something wrong with me because learning colors, shapes, counting, math facts etc was so grueling, or because learning appropriate social skills and matching clothes equally mystified me....ok still mystifies me. What an awful feeling for anyone to feel like "There is something wrong with me." I do not want Jessica to grow up feeling that way, just like the girl in the show did not want to feel that way. You can't change what other people think about you or how they treat you. But for some reason, thinking about it as if I am from a different planet with a different version of normal, I was finally able to make the idea "there is nothing wrong with me" stick when it hasn't before. There is also something empowering about being able to say, "Despite how hard it was, I did it myself." If there are two things that I want to keep in mind as we are raising Jessica, they are: 1) Trying to provide more opportunities for her to see her strengths and hopefully fewer opportunities for her to see her weaknesses and 2) Help her to learn how to adapt when she finds something that is a weak area for her so that she can do it herself.

Thursday, January 27, 2011

Ups and Downs

The last several months have had lots of ups and downs. Some weeks I feel really good about what we are doing and how Jessica is improving. Other weeks I feel really down about what we are doing and how much further Jessica still has to go. Recently I've noticed a trend. The weeks that I feel really good are also the weeks when one of our therapists is really pleased with Jessica's progress or someone says something about how much progress Jessica has made or my mother-in-law says that Jessica is really lucky to have me as her mom because I know how to help her because I am a lot the same way. The weeks I feel really down are the weeks that her doctor starts talking about Aspergers (again) or a therapist asks what we plan to do about schooling or a friend hints that she might be autistic or we get strange looks while at the grocery store or someone says "Well, you just need to do ___" (as if I am not doing enough already or somehow it's my fault she is delayed).

I clipped this out of one of John's Sunday School papers, and I keep it laminated on my fridge:

Have you ever thought about the fact that God chose you to be the parent of your child? He knew exactly what your child needed in a parent, and He chose you. He knows your strengths, your weaknesses, and your amazing capacity to love. And, He gave you this baby. But, He didn't give you this baby and walk away. He is there -- every minute of every day -- guiding you through this parenting journey. He has a story of love and redemption to tell your child through you. He wants your precious baby to know that their Heavenly Father is there to help them, just like He's there to help you -- every step of the way.

Some days it is hard to remember that despite all of the negatives I might hear, God has a plan, and He is with us every step of the way. Last week was great. This week was tough. Here's hoping next week will be one of the great ones...

Monday, January 24, 2011

Jessica's 3rd Birthday

Part of the reason I have been so busy the last couple weeks is because as soon as we got back from Christmas, I had to start getting ready for Jessica's birthday party. I had it all planned out, but several things didn't go according to plan.....our cat died (more on that later).....the cake didn't turn out right and I had to start all over again....I found out after I got the food that most of the people we invited were sick....It was just one of those weeks!! Amazingly enough the party was just right! This year we did a Teenage Mutant Ninja Turtles theme!

I created these cute invitations on the computer and then had them printed out as photos! They turned out really nice looking and cost me a couple dollars!

The decorations were simple enough. I'd had the crepe paper for years, and I bought the balloons for about $1 (ok $2....I lost the first package....which I found.....AFTER the party)!

I made the cake from scratch. It turned out great (the second time)! I made red marshmallow fondant for the face mask (which was amazingly easy), googly eyes for the eyes, and melted semi sweet chocolate chips for the mouth and nose. I had no cake decorating supplies so I did end up purchasing icing coloring and a round tip/bag.

This is another shot of the cake. I also ended up ordering pizza and purchasing paper goods to match the crepe paper. I was going to make homemade pizzas with crazy toppings and use regular plates, but when the cat died, I just couldn't take anymore.

I made felt face masks for party favors! I got the fabric for $1.44 and only used half of it. They wouldn't cut it any smaller.

Borrowing an idea from Shannon, I also made cookies for party favors! I dyed the cookie dough with food coloring and shaped them by hand. Then I put googly eyes on with melted semi sweet chocolate chips and drew a mouth!

For entertainment we set up the old sewer and figures I had as a child along with the turtle van and some of the figures David had as a child!

Jessica opening presents....while her friends are distracted by the Teenage Mutant Ninja Turtles video we had playing. We bought those last year for me and Jessica to watch as I lay on the couch trying to keep from getting dehydrated and running to the ER while pregnant with John! That might explain why she likes Teenage Mutant Ninja Turtles so much! :-)

Jessica blowing out her candles! It took 3 tries, but she finally got it!!

The entire party except for David and one of the kids. It ended up being the perfect size! We were all able to have fun and relax!!

Jessica thought the cake was awesome!!!!! In fact, she ate so much of it that it took about a week for her poop to stop turning green....gross, I know!

I debated for at least a month on whether or not to get foam swords for the party.....I wasn't sure how the girls would react. I decided to get some at the last minute (so of course I ended up paying more).....I shouldn't have worried! The kids LOVED them!!!!

A picture of all the kids playing in Jessica's room. This was the best picture I got.....seriously......taking pictures of kids is like herding cats!!!!!

So...now you have the story of how my $10 party turned out to be much more expensive, but we all had a great time and enjoyed celebrating Jessica, so I guess that is all that really matters!

A picture of Jessica out in the garage with her daddy for the first time. She hammered, glued, clamped, screwed, measured, marked, sanded, and used a saw! She had a great time!!! This particular picture makes me think of my father-in-law.

The last 3 years have been a fun and crazy ride, and I am sure that what is left to come will be even more exciting!!! Jessica, you are a very sweet and fun child to travel the journey of life with. May you never loose your sweet, compassionate spirit or your exuberance for life. They are gifts that will only bring joy to those blessed to share the journey with you! We love you!

Sunday, January 23, 2011

A Few Pictures

Well, I am still horribly behind from the last few months with Jessica's therapy, LOTS of traveling, the holidays, etc. I am hoping to do a few catch up posts over the next couple weeks. We tried to take a cute picture of our kids tonight in their footie pajamas, but instead we got this....lol

We tried the classic pose of sitting them next to each other, but instead we got this...

....and this.....obviously related to my side of the family.....

Then we tried sitting John in front of Jessica, but apparently he doesn't like to be squeezed to death....who knew?!?!?

As a last ditch effort, we tried putting me with a book as a distraction in the shot.....you can see how well that worked...

Thankfully, we did manage to get one that was halfway decent out of those shenanigans!!! Just so you know that wasn't even close to the total number of shots we took!!!

Friday, January 7, 2011

My Fabulous Husband

David and I did not get each other anything for Christmas this year, but while I was out of town, David made some modifications to a room in our house that I enjoy spending a lot of time in: my kitchen! He bought me a nice chef's knife that he found for a good deal at TJ Max --- mine just put a dent in tomatoes!! (He has also been researching the "correct" way to cut with a knife....I didn't even know there was a "correct" way!!!) He also bought me a knife block for $3 at a thrift store to keep on top of the fridge! (We had been keeping the knives in a casserole dish in a locked cabinet after Jessica came running at me with the chef's knife one day wanting a piece of cheese!!!!) I am not sure if I was more excited about his thoughtfulness or his shopping skills! And.....drum roll please.......he built me this gorgeous spice rack!!!!!!!!!!!

It is made of oak. I have never liked oak, but I love this spice rack. He used linseed oil to finish it. I think I just don't like stains on oak because it makes the grain "pop" out. This has a softer, more natural look.

Previously, my spices had been sitting on top of the upper kitchen cabinets (because Jessica enjoyed opening and dumping my spices all over the counter top)! I am so excited about all of the surprise improvements me made to the kitchen while I was gone!!!!!! I love practical gifts that show that the giver is really paying attention! :-)

Monday, January 3, 2011

It's a Wonderful, Meaningful Life!

For Christmas, Jessica received the new Veggie Tales dvd, It's a Meaningful Life, from one of her great-grandmothers. It is based off one my favorite movies, It's a Wonderful Life. After watching It's a Meaningful Life with Jessica, I do believe that I might actually like it better than It's a Wonderful Life! "Sacrilege!" ...I know, but I think I learned a very valuable lesson this year from that video. Innately I am a scientist. I love to explore life in a very hands-on way. My favorite television shows are Star Trek. Things of an abstract nature can be rather challenging for me. There are things about religion that I find rather challenging as well because some things are not concrete and cannot be proven. However, over the past year I have been slowly coming to the realization that if I cut all of those "touchy-feely" religious beliefs out of my life, then what I am left with is anxiety and stomach ulcers!

The last couple months have been a bit of a strain for me. As Jessica grows closer and closer to school-aged, it becomes more and more apparent that she is delayed in multiple areas of development. That fact in and of itself is not what has been bothering me. I value all children for who they are just the way God made them, and I do not have any expectations for Jessica to live up to, save one: to be sweet. What has been stressing me is worrying that I am not being the parent she needs me to be. Am I making the right choices? Do I have her in the right therapy with the right therapist? Are we doing enough homework to help her progress as well as possible in therapy? etc, etc, etc. David has also been strained because of the financial side of it. How long will she need therapy? Can we afford to send her to the best therapists we can find as long as she needs it? We are actually in the process of making some major changes to our household in the next few months to address some of these concerns.

But the thing that has made the biggest difference in how we feel about all of this is what I learned from It's a Meaningful Life: God has a purpose for my life. Yes, I grew up believing that, but it was one of those things that I could never really get my hands on concretely, so I let go of that belief. I have since learned that I am a happier person when I choose to believe that my life has meaning, that I have a purpose, so I am choosing to believe it! God gave me the life experiences that I have had growing up with severe ADHD, so that I would be ready to be just the right Mommy for Jessica. He gave me parents who really believed God made me special and pushed me to exceed the expectations most people would have for someone like me. God guided my choices in college so that I would have just the right tools to help me. I walked into my first graduate class in School Psychology without having a clue what a School Psychologist did and ended up being fortunate enough to find myself in a program that is very behavioral, which was just what I needed. He also arranged that I would take a very different path from what I expected and meet David, my husband, who is best described as my partner. We make an awesome team and work so well together. God continues to bless us with both positive and negative experiences that allow us to learn more about Him. So....Welcome 2011. I'm ready to grab you by the horns....so bring it!

Saturday, December 18, 2010

Merry Christmas

We had a very nice Christmas with the kids today! This was how the tree looked when we went to bed last night:

All of the kids' piles

What Santa brought Jessica: a doll (with hair!), a baby doll changing table, some fruit, candy, and Care Bears figures.

Cute doll for only $10 huh? Not high quality but perfect for an almost 3 year old!

What Santa brought John: Shakable Containers, Soft Blocks, a Taggie Blankie, and bananas.

Considering how many times a day our cat endures having his hair pulled or being tackled without lashing out, we felt he deserved a little stocking too: cat treats and a new mouse.

The kids checking out what Santa brought them, and the cat enjoying being in the middle of it all!

Jessica wore her new robe!

After checking out what Santa put in her stocking, Jessica helped John unload his stocking! This year John got to use the stocking my great-grandmother made for me. Jessica used it her first Christmas as well. I plan to make him one just like it this year to match the one I made for Jessica.

John really liked his presents....and made some pretty cute faces!

Another cute face!

And Jessica discovered that her baby doll changing table can double as a triple bunk bed!

The kids all seemed to enjoy their gifts from Santa! All in all, a very merry Christmas for only $30!

Friday, December 17, 2010

Christmas Eve!

Most years we travel for Christmas, so most years we celebrate Christmas at home the weekend before. Therefore, tonight is Christmas Eve!!! We had a nice, relaxing evening watching The Muppet Christmas Carol and opening packages!

Our tree this year....up close it looks a little rough for wear this year!

The kids' packages in the gift bags that I made here...aren't they darling?!?!

Jessica opening her gift.

Trying on the robe I made for her with the house shoes I traded my mother for. She LOVES the shoes, though we are still a little uncertain about the robe.

John opening his package.

The packaging is still the best part!

John wearing his Christmas ensemble: homemade newsboy hat and baby legs!

Jessica enjoyed setting out the cookies and milk for Santa (although she tried to wear her stocking). We watched several Christmas movies this month, so she seems to be catching on to the idea!! Tomorrow morning should be pretty exciting!! Now some elves I know need to get busy... I will post pictures of Christmas morning later!

Thursday, December 16, 2010

I'm still here...

Just wanted to pop in for a moment to let you know that I have not disappeared off the face of the planet! We have been very busy after our trip at Thanksgiving....unpacking, doing laundry, going to appointments, getting ready for Christmas, and getting ready to travel for Christmas....oh wait that is just what I have been busy doing! David and the kids have also been pretty busy!

David has been working hard trying to save up a little bit of off time for Christmas. John just started babbling the other day!!! Jessica didn't start babbling until 9 months, so I was quite surprised!!! John is also sitting up unassisted now! We do still have the occasional tumbles, but he is getting much better! John also went to the eye doctor with me the other day. They think one of his eyes is slightly turned in, but they are hopeful that it will correct itself. They also noticed that he is slightly nearsighted. At this point we don't have to do anything about his eyes, but the doctor would like to see him back in a year to make sure everything is developing as it should. I also got new lens and new frames!! I have not had new frames since before we got married and the paint was beginning to rub off!! Sorry, no picture....I am still trying to find a suitable time to go by and pick them up.....with both of the children....

Jessica has been seeing her Speech Therapist and her Occupational Therapist once a week for about a month (about two months for the Speech Therapist). Last week was a tough week. Jessica was more difficult to handle than usual, and David and I noticed yet a few more milestones her friends were reaching that she has not. The closer she gets to school-aged the more obvious to us the delays become. The apple does not fall far from the tree. Jessica is A LOT like me. Although our pediatrician keeps thinking that she has Aspergers and that she must get it from David....for the record, we don't agree. Currently, the thinking is that Jessica is very distracted and that this paired with her highly visual learning style is preventing her from meeting appropriate developmental milestones.

This week, we have been seeing GREAT gains!!! For quite some time, Jessica felt like the television needed to be on all of the time, even though she wasn't watching it. Recently, she has started requesting it less often and has been more interested in activities like board games, playing with John, running around the house, and playing with her toys! She has also been talking a lot more and taking a real interest in communicating things that interest her --- this has been very entertaining!!! We are also looking into some additional supports as well. Overall, we are very hopeful and pleased with all of the progress she has made! We are also relieved to be getting a break from all of the therapy for a week at Christmas!!!!! It can be quite draining adjusting to a therapy intensive schedule and all of the emotions that go along with it.

Tuesday, November 30, 2010

Tour of the South - Part 2

We just got back from a week and a half tour of Tennessee with our friends and had a great time! It was so nice to be able to see so much of the family, relax a bit, and enjoy so many fun activities! Traveling with two 2 year olds and a teething baby limits how many cute pictures you are able to get, but here are a few we managed to snag!


I got some great pictures of David's family!

David's grandmother gave Jessica a porcelain doll. David's mom and I both thought she was nuts giving a two year old a porcelain doll, but she LOVES it and has been very careful with it!

David's sister was even in town with her boyfriend! I didn't get a good shot of her boyfriend, but I have to say....he is pretty awesome with babies!

Jessica had a great time wandering around the zoo with Pa Pa!


Jessica being Jessica!

Looking at all the animals with Pa Pa.

I thought the fall leaves were just gorgeous!

I would just like to point out that this is my dad's natural hair color.....I have AWESOME genes!!!!!

Our friends joined us, and our first stop was Graceland!

This was my first trip to Graceland. What impressed me the most was how generous and modest (considering how extravagant he could have been) Elvis was.

Enjoying banana splits at Graceland!


Best friends at the Enchanted Forest at the Pink Palace Museum (It is a museum of natural and local history).

Jessica actually ran up to give Santa a hug this year!!!! The first year she screamed bloody murder, and the second year she was very uncertain about the entire experience!

Jessica told Santa she wanted a "pumpkin" for Christmas, and Jessica's friend told Santa she wanted a "real tyrannosaurus rex" for Christmas. Santa seemed confused by Jessica's request and gave Jessica's friend the "sometimes we don't always get what we ask for" speech.

Next stop was the Children's Museum! Jessica went down the second story twisting tube slide for the first time by herself (It is supposed to only be for kids 4 and older, but I decided that rule didn't apply to us!)

This is the only picture of the girls together at the museum because they preferred completely opposite activities!!

However, Jessica did actually try out some other exhibits this time outside of the traditional visits to the Fire truck, police car, and Autozone! Here she is dancing in front of a green screen!!

She also went shopping at the Kroger (her mother's favorite exhibit) for the first time. The basket said to only get 3 items....I decided that rule didn't apply to us either! :-)

John also enjoyed the toddler section at the Children's Museum. Mom and Dad bought a pass, and I think both John and Jessica will really enjoy going back when we are up for Christmas!

Jessica also tried out the dentist exhibit for the first time! Pa Pa seemed pleased!

We obviously know how to brush our teeth!

Then we had to take the traditional visits to the home improvement section!

Dad had the camera and actually managed to get a few shots with me and John in them as well!

Then it was time for the trip to the Autozone. Jessica was very frustrated that she could not find the key to the Cadillac so she could drive!

So she moved on to the simulator!

John and Pa Pa spent some time bonding while John napped and I chased Jessica!

Jessica also enjoyed flying the Fed Ex jet!

Here we are at Zoo Lights....not a great shot but it was better than the other one!

All 3 kids were passed out by the time we got back!!

Other things we did while in Memphis: watch The Little Mermaid every night, went on a driving tour of Downtown, and made a stop by The Village Toymaker, aka the BEST toy store in Memphis!

The girls also created a new game where the jump up and down on my bed, playing the piano, and singing "1-2-1-2-1-2..."

Then they both fall over backwards and dissolve into giggles!

John also enjoyed very very shallow baths in the big tub on his tummy because he splashes too much for the sinks but he can't sit up well enough for me to be able to hold him AND bath him!

John also enjoyed some bonding time with MaMa!

Then it was off to Nashville, where MaMa got to read to Jessica for the first time! MaMa has been wanting to read to Jessica for a while, but we could never get her to sit still long enough!!!

Both Jessica and her first enjoyed hearing about Patsy Ann!

We also took a trip to the Opryland Hotel that recently reopened and enjoyed a boat ride (with 3 children under 3....yes, we know we are crazy)!

Other highlights from our Nashville portion of the trip include: seeing the Hermitage, Thanksgiving with my dad's family, and attending a Marionette show by the same troop that I saw when I was a little girl that has been performing since 1938! Jessica even sat for half of the performance! The other half of the performance we spent in the art room across the hall coloring and painting! I do wish we had something like that here!

Then it was off to Gatlinburg! If you only have one day, I think the best way to get a good taste of the area is to go to Dollywood. They have rides and fun things to do, great food, cultural shows, and cute shops with artisans! Jessica actually enjoyed riding the carousal!!! Last time she cried the whole time!

A great shot of our friends!

Jessica and her friend riding a duck ride all by themselves!!

Jessica and her friend riding a flying bee ride all by themselves! (Thankfully they did not stand up until the ride mostly stopped!)

And a classic Jessica shot! (And yes, the ride was still moving.)

We had a great time but are glad to be home! Right now I am busy trying to finish getting everything ready for Christmas and another trip to Tennessee for the holidays!